Patients Research Dysautonomia. This group does not have a welcome message.
Thank you for joining Patients Research Dysautonomia (PRD). You have been selected because of your trusted knowledge and effort in spreading dysautonomia awareness. There are so many resources out there that are useful to us dysautonomics. I have enjoyed watching your personal YouTube accounts of your struggles with this illness. I am hoping that we can come together as a group to research, curate and disseminate research information that we find on the internet or within our studies outside of the internet. That's my simple vision. Above all else, I am hoping that we will be of assistance to those newly diagnosed patients who simply need support at the beginning of their post-diagnostic journey. Be good. Be patient. Be in the moment. ~MissNikkiAnn, PRD Founder/Moderator/Researcher/Writer. Dysautonomia Youth Network of America, Inc.
Dysautonomia is a medical term often utilized for a group of complex conditions that are caused by a dysfunction of the autonomic nervous system (ANS).
The ANS regulates all of the unconscious functions of the body, including the cardiovascular system, gastrointestinal system, metabolic system, and endocrine system. A dysfunction of the ANS can cause debilitating symptoms and may pose significant challenges for effective medical treatment. Orthostatic intolerance (the inability to remain upright) is a hallmark of the various forms of dysautonomia. Dysautonomia conditions can range from mild to debilitating and, on rare occasions, can be life threatening.
Each dysautonomia case is unique and treatment must be individualized and may include pharmacological and non-pharmacological methods. Childhood dysautonomia conditions typically (but not always) strike adolescents, often after a period of very rapid growth. Dysautonomia conditions are widely unknown to society at large. NDRF. Dr. Levine , Dr. Benjamin Levine, Dr. Benjamin David Levine. Featured Publications Persistent sympathetic activation during chronic antihypertensive therapy: A potential mechanism for long term morbidity?
Q, Zhang R, Witkowski S, Arbab-Zadeh A, Prasad A, Okazaki K, Levine BD Hypertension 2005 45: 513-521 Effect of Aging and Physical Activity on Left Ventricular Compliance Arbab-Zadeh A, Dijk E, Prasad A, Fu Q, Torres P, Zhang R, Thoma JD, Palmer DM, Levine BD Circulation 2004 110 (13) 1799-1805. National Institutes of Health (NIH) Autonomic Dysfunction Center - Autonomic Dysfunction Center Home. The Vanderbilt Autonomic Dysfunction Center was established in 1978 as the first international center for patient care, research, and training focusing exclusively on disorders of the autonomic nervous system.
Its creation brought together in one site a cadre of physicians, scientists and nurses who could foster a balanced scientific approach to elucidation of the etiology and optimal therapy of these disorders. Over the years, many people have contributed to this effort at Vanderbilt. Many of the young scientists and physicians who have trained here have gone out and established similar centers in other parts of the world. Others have taken positions at academic research centers and pharmaceutical firms where they are seeking improved drugs to treat these disorders. Centers for Disease Control and Prevention. Home - STARS - Syncope Trust And Reflex anoxic Seizures, information and support. Invisible Disabilities Association — Encouraging, Educating and Connecting.
The Dysautonomia Connection. DINET.org.