background preloader

Covid-19: Long Haulers

Facebook Twitter

- At present, we have no firm indication how many people are experiencing persisting ill health following COVID-19.

However, if current estimates of around 10% of people who were home managed are accurate, this could translate into around 60,000 people with some form of post-COVID ill health that has persisted beyond a month.

- According to Tim Spector, professor of genetic epidemiology at King’s College London, around 12% of sufferers report symptoms to the Covid Tracker app for longer than 30 days. One in 200 says the effects last for more than 90 days.

- Long-COVID, post-COVID fatigue and post-COVID fatigue syndrome are all being used as diagnostic labels.

- Many have debilitating fatigue as a primary symptom.

- Some have respiratory, heart and other symptoms that are the same, or very similar, to the acute infection – i.e. breathlessness, palpitations, intermittent fevers, loss of taste or smell.

- Others have symptoms that are very similar to those seen in post-viral fatigue syndromes that can follow any infective illness and may precede ME/CFS.

- Some have a combination of post-viral fatigue syndrome symptoms and acute COVID-19 infection symptoms.

- In cases where post-COVID syndrome symptoms have persisted for more than three months, and are consistent with those of ME/CFS, a diagnosis of post-COVID ME/CFS should be considered.

(Dr Charles Shepherd, Hon. Medical Adviser, ME Assoc. 9/22/20)

.

COVID-19: Long-term effects -Mayo Clinic. COVID-19 (coronavirus): Long-term effects COVID-19 symptoms can sometimes persist for months.

COVID-19: Long-term effects -Mayo Clinic

The virus can damage the lungs, heart and brain, which increases the risk of long-term health problems. By Mayo Clinic Staff Most people who have coronavirus disease 2019 (COVID-19) recover completely within a few weeks. But some people — even those who had mild versions of the disease — continue to experience symptoms after their initial recovery. Older people and people with many serious medical conditions are the most likely to experience lingering COVID-19 symptoms. FatigueCoughShortness of breathHeadacheJoint pain Although COVID-19 is seen as a disease that primarily affects the lungs, it can damage many other organs as well. I'm a Covid-19 'long-hauler'. For us, there is no end in sight. As a writer, I spend my days trying to craft believable, satisfying narratives.

I'm a Covid-19 'long-hauler'. For us, there is no end in sight

But as a Covid-19 “long-hauler”, I have given up trying to find an internal logic to the story of my illness. As we now know, thousands of people are suffering a range of bewildering and debilitating post-Covid symptoms that don’t follow any predictable act breaks or intervals. Happily, the recent news about the emergency rescue package for the UK’s cultural industries, including my own, was followed by the NHS announcing an online Covid-19 rehab service, promising a “personalised package of aftercare”.

Pacing

Garner on Covid-19 at 14 wks: phantom speed cameras, unknown limits, & harsh penalties. “If my husband had said he was still sick with covid-19 after a month, I’d say he was milking it.”

Garner on Covid-19 at 14 wks: phantom speed cameras, unknown limits, & harsh penalties

Straight talking from a Liverpudlian woman on one of my WhatsApp groups in April when I had been ill for a month; what would she say to me now at 95 days? I am unable to be out of bed for more than three hours at a stretch, my arms and legs are permanently fizzing as if injected with Szechuan peppercorns, I have ringing in the ears, intermittent brain fog, palpitations, and dramatic mood swings. Am I milking it? Is the virus still there? Or do I have CFS/ME? I am cautious about labelling conditions, particularly with a new virus that has many different effects on our bodies. I committed to rest in my last article, but let me tell you, pacing is not easy. Anna explained that the “busts” can be experienced as a reprint of their entire symptom complex in the acute phase. Once I recognised this pattern, some of the angst among the thousands of “long haulers” on Facebook is explained.

Long-Haulers Are Redefining COVID-19. Editor’s Note:The Atlantic is making vital coverage of the coronavirus available to all readers.

Long-Haulers Are Redefining COVID-19

Find the collection here. Lauren Nichols has been sick with COVID-19 since March 10, shortly before Tom Hanks announced his diagnosis and the NBA temporarily canceled its season. She has lived through one month of hand tremors, three of fever, and four of night sweats. When we spoke on day 150, she was on her fifth month of gastrointestinal problems and severe morning nausea. 'Weird as hell’: the Covid-19 patients who have symptoms for months. In mid-March Paul Garner developed what he thought was a “bit of a cough”.

'Weird as hell’: the Covid-19 patients who have symptoms for months

A professor of infectious diseases, Garner was discussing the new coronavirus with David Nabarro, the UK’s special envoy on the pandemic. At the end of the Zoom call, Nabarro advised Garner to go home immediately and to self-isolate. Garner did. He felt no more than a “little bit off”. Days later, he found himself fighting a raging infection. Garner refers to himself wryly as a member of the “Boris Johnson herd immunity group”. There is growing evidence that the virus causes a far greater array of symptoms than was previously understood. He had a muggy head, upset stomach, tinnitus, pins and needles, breathlessness, dizziness and arthritis in the hands. Since his piece was published, Garner has received emails and tearful phone calls from grateful readers who thought they were going mad.

Post-COVID-19 Clinics Help Survivors Recover. Until five months ago, Luis Santos was a security guard who spent much of his free time biking and bodybuilding.

Post-COVID-19 Clinics Help Survivors Recover

Then in March, the 35-year-old New York City resident contracted COVID-19 — on a crowded subway, he suspects. While Santos was never hospitalized for his illness, he has continued to suffer from a range of debilitating and sometimes frightening symptoms, including trouble breathing, joint pain, memory loss, and fatigue. He’s lost around 40 pounds. And he’s been to the emergency department more than 20 times. Desperate, Santos took to the internet, where he found the Center for Post-COVID Care, created by the Mount Sinai Health System in New York City. “I’m making progress, but I’m not the man I used to be,” he says. Fatigue Video 3. ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS. Dr Charles Shepherd, Hon.

ME Association Guide to Post-Covid Fatigue Syndromes and Post-Covid ME/CFS

Medical Adviser, ME Association Introduction and Key Messages Back in April the ME Association became aware of an increasing numberof people who had been ill with COVID-19 and were not improving, even after several weeks. Almost all had been self-managed at home with an illness that mostly varied from mild to moderate in severity, but did not require hospital admission. Supporting recovery after COVID-19. What we know about Long-term effects of COVID-19 <PDF> 9/2020.