Blogger
Get flash to fully experience Pearltrees
I am reminded that the venous condition we share is congenital. That is not synonymous with hereditary as we don’t know the causal factor or factors. They could be caused by infection during pregnancy, nutritional deficiencies of iodine, riboflavin, vitamin A, toxins or other unknown factors. That MS can be passed genetically is a well accepted theory.
Here's Your Sign!
Why the Inaccuracies in Restenosis Statistics?
The topic of the day appears to be restenosis percentages and statistics. I think I have talked about it on four or five different group pages, so I copied my last comment to post it here. The numbers we are tossing around are likely very inaccurate at best. Everyone is going to have very different opinions because each case is unique. All of the points made have merit. One of the reasons there is so much disparity is because all doctors do not openly communicate.Connecting to the iTunes Store.
New universal iOS app from Apple. Use it to manage your Wi-Fi network and AirPort base stations from your iPhone or iPad.
Things Have to Change!
Much of 2010 was spent living , thinking, dreaming, sharing and worrying about MS and CCSVI. I suspect 2011 will find me living along those lines. I also have to admit that too much time was spent in conflict with others who do not share my views and opinions. While most of us have this one thing in common, it may be the only common denominator for some.
Looking Forward to the New Year!
My New Year’s Resolution is to continue the fight to assure safe and effective treatment for CCSVI for all, regardless of nationality, financial situation, or negativity of their own physicians. CCSVI was the top story for 2010. It will be the biggest success story for 2011. We have become the largest and most successful patient advocates in modern history.
Cognitive Issues In MS / CCSVI: I often said only half jokingly that of all the things MS had taken for me, I missed my mind most. I couldn’t remember where I put things, important dates or even what day of the week it was sometimes. Thoughts I wanted to express were not the words that came out of my mouth. During remissions, I did not get total relief from these problems. When I progressed to SPMS, I was afraid I might really lose my mind.
Cognition Issues in MS/ CCSVI
CCSVI {M}ammanannys{S}tory
Turning the tables on the placebo effect. by Oct 13
We can't throw caution to the wind, but full speed ahead!
There are a few things that I hear and read very little about concerning the Liberation Procedure. Though the original name gave it a somewhat theatrical air, I find it more appropriate as my life improves. There are common sense steps to take for any medical treatment or procedure.Finding Common Ground
Things are hectic for everyone right now and I’m no exception. I have fallen back on my blogging to work on Christmas projects. Today I decided to go to an MS meeting, not something I have done in a very long time. I was invited by a friend from the CCSVI Locator group who lives close by. We had never met in person and communicated only a few times on the internet . I didn’t know what to expect or how I would be received.
No Excuses, No One to Blame and Nowhere to Hide...
I'm sorry to hear about this. So much is still yet untested. There needs to be improvements in the procedure itself that will only come with experience and shared learning. I knew nothing about the sigmoid sinus until shortly before I had my second procedure. It may well be that the liberation procedure will be found more effective with complementary treatment. We know that there are some procedures that failed simply because they were under treated.
BTW: Those of you who know a little bit about my personal journey through CCSVI might be as tickled as I was to hear that my "before CCSVI" neurologist will no longer be treating Multiple Sclerosis patients. Although the announcement was hardly fancy, it was received with glowing reviews by a few of us. His pet project is sleep disorders."Due to the accelerated demands and importance of sleep disorder studies, I will no longer be able to treat patients with Multiple Sclerosis. Present patients will be referedd to DR.______ or DR._________,my former associate who dealt with that portion of my practice."