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Penn Alps. Mark Scrimshire sur Twitter : "#Cinderblocks2 Day 2 I am talking BlueButton and #DataindependenceDay after @ePatientDave. #Cinderblocks2 Day 2 I am talking BlueButton and #DataindependenceDay after @ePatientDave. Realtime notes from day 2 of CinderBlocks2 in Grantsville, MD. ePatient Dave recounts his emergence on the national stage.

#Cinderblocks2 Day 2 I am talking BlueButton and #DataindependenceDay after @ePatientDave

I remember him at Health 2.0 in Boston in 2009. I saw him preaching from the balcony with healthcare looking up to him. We still are. Today Patient talks about Patient Engagement. People will perform better when they’re informed better. The issue of patient access to their health information is moving quickly. Patients are not just consumers. In 2012 since 1999 Wages have grown 56% but Consumer contribution to medical spending has grown 212%. Dr Danny Sands recommended Gilles Frydman’s ACOR Listserve. Within two hours of posting he received invaluable advice. Electronic Health Info Petition.

Fight DPS Today #DataIndependenceDay. #HDPalooza #DataIndependenceDay. Info_blocking_040915.pdf. #DataTherapist. Sign up. Working with Open Health Data APIs. Where did the issue of health data exchange disappear to? On the first morning of the biggest conference on data in health care–the Health Datapalooza in Washington, DC–newspapers reported a bill allowing the Department of Veterans Affairs to outsource more of its care, sending veterans to private health care providers to relieve its burdensome shortage of doctors.

Where did the issue of health data exchange disappear to?

There has been extensive talk about the scandals at the VA and remedies for them, including the political and financial ramifications of partial privatization. Republicans have suggested it for some time, but for the solution to be picked up by socialist Independent Senator Bernie Sanders clinches the matter. The Past, Present and Future of Data. Yesterday, our CEO, Nick Ducoff presented at Data Content, an Infocommerce conference.

The Past, Present and Future of Data

In this presentation geared towards fellow data publishers, Nick takes us through a history of information and his thoughts on the future and where Infochimps fits into the puzzle. If you’d like to review a full transcript of his presentation, you can check it out after the jump. Enjoy! Hi everyone, my name is Nick Ducoff and I’m the CEO and co-founder of Infochimps.

I am excited to tell you about what we’re doing at Infochimps but first a bit of a history lesson, starting with how I got here in front of you, and then how data has become the topic de jour. I guess you can say I’ve been web-curious since the early 90s. Most of what is now referred to as Web 1.0 was taking offline businesses and scaling customer bases through online sales. Medical records for 1.7 million people stolen from van. In one of the larger medical data thefts reported, personal health data for about 1.7 million New York City patients, hospital staffers and others was stolen on Dec. 23 from an unlocked van in Manhattan, the New York Times reports.

Medical records for 1.7 million people stolen from van

The electronic record files, which were stored on 20 years worth of magnetic tapes, contained personal information, protected health information or personally identifiable employee medical information on patients and workers, including names, addresses and Social Security numbers, according to the Wall Street Journal and the New York City Health and Hospitals Corporation. The van belonged to GRM Information Management Services, the city's medical records vendor. Those affected by this patient privacy breach include patients, contractors and vendors who were treated by and/or provided services over the last 20 years at Jacobi Medical Center, North Central Bronx Hospital or their offsite clinics which make up the North Bronx Healthcare Network. The PHR - will WebMDs walled garden win? I have my doubts. "Body Computing" and the Right to Health Information. Fellow cardiac electrophysiologist Leslie Saxon, MD thinks patients should own their medical device information in the era of "body computing:" But there are major obstacles standing in the way of people's rights to access their health care data.

"Body Computing" and the Right to Health Information

Dossia, Microsoft HealthVault & Google Health:Illegal in NJ? In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a health information technology product that has not been certified by CCHIT.

Dossia, Microsoft HealthVault & Google Health:Illegal in NJ?

A person or entity that violates this provision is liable to a civil penalty of not less than $1,000 for the first violation, not less than $2,500 for the second violation, and $5,000 for the third and each subsequent violation, to be collected pursuant to the “Penalty Enforcement Law of 1999,” P.L.1999, c.274 (C.2A:58-10 et seq.).· The bill defines “health information technology product” to mean a system, program, application, or other product that is based upon technology which is used to electronically collect, store, retrieve, and transfer clinical, administrative, and financial health information.” In short Dr. Implementers' Draft: Portable Contacts 1.0 Draft B. Abstract The Portable Contacts specification is designed to make it easier for developers to give their users a secure way to access the address books and friends lists they have built up all over the web. Specifically, it seeks to create a common access pattern and contact schema that any site can provide, well-specified authentication and access rules, standard libraries that can work with any site, and absolutely minimal complexity, with the lightest possible toolchain requirements for developers.

By far the easiest way to start understanding this spec is to jump to the example in the Appendix.