Mark | Penn Alps. Mark Scrimshire sur Twitter : "#Cinderblocks2 Day 2 I am talking BlueButton and #DataindependenceDay after @ePatientDave. #Cinderblocks2 Day 2 I am talking BlueButton and #DataindependenceDay after @ePatientDave. Realtime notes from day 2 of CinderBlocks2 in Grantsville, MD. ePatient Dave recounts his emergence on the national stage. I remember him at Health 2.0 in Boston in 2009.
I saw him preaching from the balcony with healthcare looking up to him. We still are. Today Patient talks about Patient Engagement. People will perform better when they’re informed better. The issue of patient access to their health information is moving quickly. Patients are not just consumers. In 2012 since 1999 Wages have grown 56% but Consumer contribution to medical spending has grown 212%. Dr Danny Sands recommended Gilles Frydman’s ACOR Listserve. Within two hours of posting he received invaluable advice.
Even though this information was available in 2007 it is still not available to doctors in the online materials they use. Dr McDermott: “You were really sick. i don’t know if you could have tolerated enough medicine if you hadn’t been so well prepared” Embracing Patient Partnership is not new. Empowerment: Like this: Electronic Health Info Petition. Fight DPS Today #DataIndependenceDay. #HDPalooza #DataIndependenceDay. Info_blocking_040915.pdf. #DataTherapist. A few weeks ago, I was enjoying a lunch with some of my coworkers. We were discussing some of the use cases of Data Science and Business analysis that we are building for our various clients.
Somebody made the comment, that some use-cases don't need a data scientist they need a data therapist. Many of us laughed, and I even made a Twitter comment about this. A number of other people on Twitter not only retweeted the comment, but began to make comments about the application of a #DataTherapist to particular use-cases. Here are a few recent definitions that have evolved in the Twitterverse related to the data hashtag: #Data.
My definition of Data Science: The application of Statistical and Mathematical rigor to Business Data. When doing historical reporting, the analyst is reporting on facts that have occurred that the data represents. #DataOps, are the people that make the Data Architects vision happen. But what is a Data Therapist? So here goes. Dev | Sign up. Dev | Working with Open Health Data APIs. Where did the issue of health data exchange disappear to? On the first morning of the biggest conference on data in health care–the Health Datapalooza in Washington, DC–newspapers reported a bill allowing the Department of Veterans Affairs to outsource more of its care, sending veterans to private health care providers to relieve its burdensome shortage of doctors. There has been extensive talk about the scandals at the VA and remedies for them, including the political and financial ramifications of partial privatization.
Republicans have suggested it for some time, but for the solution to be picked up by socialist Independent Senator Bernie Sanders clinches the matter. What no one has pointed out yet, however–and what makes this development relevant to the Datapalooza–is that such a reform will make the free flow of patient information between providers more crucial than ever. Strangely, I heard little talk about Blue Button or any kind of data exchange at the DataPalooza. Bryan Sivak as MC on the first day of the Datapalooza Data is sexy. The Past, Present and Future of Data. Yesterday, our CEO, Nick Ducoff presented at Data Content, an Infocommerce conference. In this presentation geared towards fellow data publishers, Nick takes us through a history of information and his thoughts on the future and where Infochimps fits into the puzzle. If you’d like to review a full transcript of his presentation, you can check it out after the jump. Enjoy! Hi everyone, my name is Nick Ducoff and I’m the CEO and co-founder of Infochimps.
I am excited to tell you about what we’re doing at Infochimps but first a bit of a history lesson, starting with how I got here in front of you, and then how data has become the topic de jour. I guess you can say I’ve been web-curious since the early 90s. Most of what is now referred to as Web 1.0 was taking offline businesses and scaling customer bases through online sales. These advancements in online business models, as well as high speed internet, has enabled cloud businesses, including Infochimps.
So how’d we get here? So who cares? Medical records for 1.7 million people stolen from van. In one of the larger medical data thefts reported, personal health data for about 1.7 million New York City patients, hospital staffers and others was stolen on Dec. 23 from an unlocked van in Manhattan, the New York Times reports. The electronic record files, which were stored on 20 years worth of magnetic tapes, contained personal information, protected health information or personally identifiable employee medical information on patients and workers, including names, addresses and Social Security numbers, according to the Wall Street Journal and the New York City Health and Hospitals Corporation.
The van belonged to GRM Information Management Services, the city's medical records vendor. Those affected by this patient privacy breach include patients, contractors and vendors who were treated by and/or provided services over the last 20 years at Jacobi Medical Center, North Central Bronx Hospital or their offsite clinics which make up the North Bronx Healthcare Network. The PHR - will WebMDs walled garden win? I have my doubts. "Body Computing" and the Right to Health Information. Fellow cardiac electrophysiologist Leslie Saxon, MD thinks patients should own their medical device information in the era of "body computing:" But there are major obstacles standing in the way of people's rights to access their health care data.
There are over 400,000 patients with implanted defibrillators that have networked capability. Up to 20 percent of people with defibrillators will be shocked from the device. While the shock is life-saving and one of the main reasons the device gets placed, patients feel something that is akin to a punch in the chest and it causes great concern and curiosity from the patient. Where does the vital information about the shock go? It is transmitted to a secure server--managed by device manufacturers--and the information is then downloaded to a secure web site for the patient's physician.
So what are those "major obstacles" to allowing patients access to their health information? Privacy and Safety But safety concerns don't stop there. Legal Concerns. Dossia, Microsoft HealthVault & Google Health:Illegal in NJ? In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a health information technology product that has not been certified by CCHIT.
A person or entity that violates this provision is liable to a civil penalty of not less than $1,000 for the first violation, not less than $2,500 for the second violation, and $5,000 for the third and each subsequent violation, to be collected pursuant to the “Penalty Enforcement Law of 1999,” P.L.1999, c.274 (C.2A:58-10 et seq.).· The bill defines “health information technology product” to mean a system, program, application, or other product that is based upon technology which is used to electronically collect, store, retrieve, and transfer clinical, administrative, and financial health information.”
In short Dr. So, let’s look into appearances only. Implementers' Draft: Portable Contacts 1.0 Draft B. Abstract The Portable Contacts specification is designed to make it easier for developers to give their users a secure way to access the address books and friends lists they have built up all over the web. Specifically, it seeks to create a common access pattern and contact schema that any site can provide, well-specified authentication and access rules, standard libraries that can work with any site, and absolutely minimal complexity, with the lightest possible toolchain requirements for developers. By far the easiest way to start understanding this spec is to jump to the example in the Appendix.
The format and meaning of the response should be readily apparent, and the majority of this document is merely an attempt to formalize the details of what should be relatively clear from this example. Table of Contents 1. 1. 2. 3. This API defines a language- and platform- neutral protocol for Consumers to request address book, profile, and friends-list information from Service Providers. 3.1.