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Share your experience and knowledge: Find peers and your audience: Love Simple - Home. Sleeplessness « Daily Living With Lupus. Discovery....a time line of Living w/Lupus | IN beginning my journal entries of my life “living” with Lupus I must first I suppose give you some background as to how I finally after over half of my life searching received what I felt like was the best gift God had given me in such a very long time. The road was so very long and most of the time I didn’t even know I was walking along it. WHEN I was 14 years old I began having joint pains that would literally put me in bed because sleeping was the only way you could forget the pain.
My mother was a very good mother and she took me to several doctors trying to find answers only to hear that “it’s growing pains or she has arthritis from playing softball”. BY time I was 17-18 the joint and bone pain had moved further along so from my knees to my ankles hurt a great deal. Again I went to the doctors to hear the same things – no blood tests ever taken or further investigation.
BY the age of 23 I had my second child – but in between having him and my first, I had a two miscarriages. Tracking down the memories. Salam all Just got my most awaiting item safely delivered by two guys from the factory. Ngeeee. like it. lovely. best quality. As they got it settled next to the radiator, I noticed how they eyerolled around my small living room. A pile of packed boxes climbing up the ceiling and also the emptied display cabinet.
This place has left us many sweet and sour memories. Getting my self to my consultant in NGH was one of the succeed i think. I still remember, day 6th we were here, 1 Syawal came in. That was what had happened during the first two weeks after we got here. Will write more and more about our priceless days in Sheffield in next posts. See you soon, very very soon. How Can You NOT Laugh At A Time Like This? « Rheumatoid Arthritis Guy. Hey Spring Break! Well I am on spring break and couldn't be happier about it. A week to relax. Well, kind of relax because I still need to study for both a chemistry and nutrition exam and I need to study for the GREs which I need to hurry up and take. I saw the endocrinologist last week and they said they did not think I need one of my parathyroids removed at that time and that the other scary thing they were thinking about is probably not what is going on.
I am going to have some specialized tests done on my kidneys to try to figure out why they are so calcified, however. In 6 months I have to repeat the blood tests to check on my levels of calcium and keep doing that every 6 months for a while. I am really happy about this because I was envisioning ridiculous scars on my neck. I am only a couple months away from being a college graduate. Well, I am actually nowhere near being done. I hope everyone is staying well! Camouflage Make-up & Lupus Scars. *this post is part of my earlier blog post titled "Despite our scars we are beautiful". Which includes natural health option to caring for your skin. This portion is specifically for those who inquired about make-up to help camoflauge scars caused by lupus. Early last year I attended a Camouflage Make-up class at the S.L.E. Lupus Foundation. I learned about two different products that are amazing in covering Lupus scars!
We even had a live session where several volunteers had their make-up done & I must say I was impressed with the coverage. The make-up artist name is Sheila J Makeup, she happens to also be a full-time nurse who is obsessed with make-up and took the time to come over and show us Lupus patients the right products and how to use them! Sheila brought up the importance of using hypo-allergenic products to prevent allergic reactions, this is extremely important as many of us have such sensitive skin. First, apply a sunscreen underneath make-up. Muahz! Young & Living with Lupus: The Re-Dedication of My Blog « Search For Cloud Nine.
Adam Selkowitz: Living, And Running, With Lupus. In 1987, at the age of 16, I had some trouble taking a deep breath, my joints ached and I was getting frequent headaches. Luckily, a family friend and doctor suggested that I go see a pediatric rheumatologist at Columbia Presbyterian in New York City. After many scans, blood tests and the normal poking and prodding that comes with finding a needle in a haystack, I had a diagnosis. My parents spoke to the doctor and then to me, and they simply said, "You have lupus. " I had never heard the word and didn't know anything about what that meant to the rest of my life. I remember learning that it was not fatal, but that there was no cure. I was told that there were pills I would have to take that should start to make me feel better, but that those same pills had some side effects that might not be so pleasant. I am lucky. Eleven years ago, my doctor, Daniel J. My life with Lupus. Butterfly Girl - Living with Lupus.
Living With Lupus. Living With Lupus- But Dying of Everything Else. Warrior Poet, Warrior Nuns. Yesterday, I walked with seven young nuns and monks from Plum Village, Thenac, France. We met at Clare College, in the Latimer Room. Birds chirped and students crunched outside on gravel, as we practised peace, and sang songs of breathing, freedom and freshness. This is the very first UK Wake Up tour organised by the young novices, some of whom were students at Cambridge themselves, and had direct experience of struggling with mounting stress and anxiety of exams and future careers. This trip is holiday and work experience for the young monastics - I could see the bouncing energy in their spirit. I couldn't stop grinning - they looked so happy! Practising walking meditation down past the yellow daffodils and the blue scilla, we painted quite a picture I imagine :) Not a single person walked past us without acknowledging in some way the quiet mindful procession.
When I was 17, I had the most delightful interview at Newnham College, to read English. What did you do BEFORE the MD/PhD Program?! Copingwithlupus: Coping with Bad Days. Coping with Pains Physically and Mentally. I left the clinic feeling devastated and desponded. Doc extended my medical leave and I have to be reviewed next week. While the skin was healing, the nerve pain was not getting any better. Doc told me to increase Lyrica from 1 to 2 tablets at night. I asked him how long can I take this medication and he replied that some patients take it for weeks! Though I know it before hand that nerve pains can last for a long time as it also takes a long time for an inflamed nerve to heal, hearing it from my Doc somewhat made me feel worse. I asked him why the pain was more intense in the night that I could not even sleep and he told me perhaps it was I am more aware of it at night while there were more distractions in the day.
What a logical but lame reason I thought. I came home and felt even more depressed. I felt much better after the crying. Despite Lupus.