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i Rate This Those who have lupus will understand the title of this post. Some people who don’t have lupus will as well. My body did what I call a SCUD.
IN beginning my journal entries of my life “living” with Lupus I must first I suppose give you some background as to how I finally after over half of my life searching received what I felt like was the best gift God had given me in such a very long time. The road was so very long and most of the time I didn’t even know I was walking along it. WHEN I was 14 years old I began having joint pains that would literally put me in bed because sleeping was the only way you could forget the pain. My mother was a very good mother and she took me to several doctors trying to find answers only to hear that “it’s growing pains or she has arthritis from playing softball”.
Salam all Just got my most awaiting item safely delivered by two guys from the factory. Ngeeee. like it. lovely. best quality.
Well I am on spring break and couldn't be happier about it. A week to relax. Well, kind of relax because I still need to study for both a chemistry and nutrition exam and I need to study for the GREs which I need to hurry up and take. I saw the endocrinologist last week and they said they did not think I need one of my parathyroids removed at that time and that the other scary thing they were thinking about is probably not what is going on.
*this post is part of my earlier blog post titled "Despite our scars we are beautiful". Which includes natural health option to caring for your skin. This portion is specifically for those who inquired about make-up to help camoflauge scars caused by lupus. Early last year I attended a Camouflage Make-up class at the S.L.E.
March 13, 2011 by freedomseeker91 i Rate This
In 1987, at the age of 16, I had some trouble taking a deep breath, my joints ached and I was getting frequent headaches. Luckily, a family friend and doctor suggested that I go see a pediatric rheumatologist at Columbia Presbyterian in New York City. After many scans, blood tests and the normal poking and prodding that comes with finding a needle in a haystack, I had a diagnosis. My parents spoke to the doctor and then to me, and they simply said, "You have lupus." I had never heard the word and didn't know anything about what that meant to the rest of my life.
Soon I'll be starting my new blog: NavyLupusArtLife . (edited now to link to the new blog-- click on the words and you'll be magically transported) As we discussed (well. . . I discussed and you read about it later) I've kind of outgrown this blog because it's too specific. So my new blog will be just whatever pops into my head and that should be, well, interesting. . . if random. I've been trying to think about when I should start, since Navy is in the title I kind of feel like I should wait until Ben is actually gone to basic and I'd like to wait until I'm no longer a teacher because have I got some stories for you. . .
Yesterday, I walked with seven young nuns and monks from Plum Village, Thenac, France. We met at Clare College, in the Latimer Room. Birds chirped and students crunched outside on gravel, as we practised peace, and sang songs of breathing, freedom and freshness. This is the very first UK Wake Up tour organised by the young novices, some of whom were students at Cambridge themselves, and had direct experience of struggling with mounting stress and anxiety of exams and future careers. This trip is holiday and work experience for the young monastics - I could see the bouncing energy in their spirit.
I'm having a bad pain day and feeling very sorry for myself. What do y'all do to get over through your own pity parties to feeling more positive or at least coping more positively with your bad days? Do you have any books or websites that you like to read for inspiration? Do you meditate or think happy thoughts? What works for you?
I left the clinic feeling devastated and desponded. Doc extended my medical leave and I have to be reviewed next week. While the skin was healing, the nerve pain was not getting any better. Doc told me to increase Lyrica from 1 to 2 tablets at night. I asked him how long can I take this medication and he replied that some patients take it for weeks! Though I know it before hand that nerve pains can last for a long time as it also takes a long time for an inflamed nerve to heal, hearing it from my Doc somewhat made me feel worse.