Complex Child Magazine. Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities.
It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials. Complex Child E-Magazine was founded in 2008 by Susan Agrawal, a parent of a child with complex medical needs. There seemed to be a great need among parents to have a body of information about complex medical issues in language without medical jargon. We recognize that parents usually know best when it comes to children with complex medical needs or disabilities. Susan Agrawal, the editor of Complex Child, is the parent of Karuna, a child with many special medical needs who passed away 9/19/2014. Dawn Neufeld - Model. Michael Bérubé - American Airspace.
Home | Away Thursday, January 14, 2010 A friend alerts me to this recent item in Lisa Belkin’s NYT “Motherlode” blog: Should Down Syndrome Be Cured?
The guest post here on Friday—about the birth of Cash Van Rowe during a blizzard, and the jolting news that he had Down syndrome—led many of you to leave comments for his parents, assuring them that the road ahead was a journey they would cherish. But what if Cash’s Down syndrome could be cured—or, more precisely, be mitigated? As you know, I have many years of history supporting people with intellectual disabilities. The Powers asked Salehi for his thoughts, and he did not disagree.
The goal of our research is not to change the personality of a person with Down syndrome but rather to help them lead more independent lives. Mom to the Screaming Masses. Bloggy Thanksgiving. Oooooh, please, please, please, if I accidentally fail to mention you here, KNOW that I grateful for you. I read your blog. I value your comments. I feel your support. I just NEVER EVER SLEEP so I mess up sometimes due to the cognitive toll of CONSTANT wakefulness.
But I appreciate you! This Thanskgiving I feel the need to say how thankful I am for the blogosphere. Christine reconnects me to the place in geography where I was the happiest. Beth inspires me to what bravery I can muster, because she exemplifies bravery, especially in dealing with things medical. Mama Mara blows my mind. Vicki took what life handed her and refused to break no matter what. Drama Mama cheers for us all. Redheaded Mama is an artist. - Home. Should HIV-Positive Women Bear Children? The modern HIV/AIDS epidemic began in California and New York in 1981, and was seen primarily as a disease limited to gay men, injection drug users, and hemophiliacs (remember Ryan White?). Today, however, the disease demographic has shifted radically. About half the people living with HIV/AIDS worldwide now are women of childbearing age, and many of these women want to become pregnant. The Harvard School of Public Health just released a report that explores this issue, "The Pregnancy Intentions of HIV-Positive Women: Forwarding the Research Agenda.
" Despite its academic tone, the report is full of riveting information about HIV-positive women and pregnancy worldwide that is sure to spark discussions among the people who read it. The report favors supporting HIV-positive women who want to become pregnant, even in resource-poor countries where health care funding is already strained. An HIV-positive woman who wants to become pregnant faces three main issues. For Jessica « Finding Your Voice. A couple of weeks ago, a friend of mine and I were talking about a study she’d just read, which concluded that people without children were happier than people with children; or, to put it more precisely, despite what conventional wisdom holds, the study found that having children did not increase anyone’s happiness.
At which all I could do was burst out laughing. Because, well. Duh. Only an academic would undertake a study like this, defining happiness as something along the lines of “satisfaction with life” and “feeling rewarded by your work.” If there’s an occupation more likely to make you feel incompetent and unrewarded than being a parent, I have never heard of it. If you weren’t an academic, you might define happiness as the experience of being fully alive. Right. These are things you’d never know if you hadn’t had your daughter. The daughter you loved even before she was born. But the universe doesn’t ask that from you. Saying Goodbye « The Life That Chose Me. When writing the following goodbye letter, I was totally and unexpectedly ambushed by the emotion that bubbled through.
It is just now, during the final days and hours of school that it has started to hit me that I will not be coming back her with these kids. And I have spent a lot of time in this room with these kids. I am still busy and still working to get all the end-of-year stuff done, but it is creeping in…it’s almost over. I’ve been ready for the end for so long, I did not expect the leaving to reach out and snag my emotions like that.
Sometimes Goodbyes Aren't Sad. I haven't kept a baby book of Micah's developments. I started out with grand intentions - after all, I'd kept a record of all the other kids. At least for a while. Dennis Debbaudt's Autism Risk Management. Love That Max. Maternal Instincts.