Fourth Annual CMS Multi-State Medicaid HITECH Conference :: Webcast. Memory Aids | Dementia Care Central. SMASH SMA.
Pat Summitt, Tennessee women’s basketball coach, diagnosed with Alzheimer’s disease. “Are you having trouble with your memory?” Friends began asking, puzzled. “Sometimes I draw blanks,” Summitt finally admitted. Her first clue that something was badly wrong came last season, when she drew a blank on what offensive set to call in the heat of a game. “I just felt something was different,” she says. Summitt believed her symptoms were the side effects of a powerful medication she was taking for rheumatoid arthritis, an excruciating condition that she has quietly suffered with since 2006.
Denial was followed by anger. Last week Washington D.C. attorney Robert B. Full disclosure: It is the measure of Summitt’s large-heartedness that she could call any of a half-dozen people her closest friend. “It is what it is,” she said. ‘You will always be our coach’ Last Thursday, Summitt, Barnett, and her 20-year-old son Tyler, who is a junior at the University of Tennessee, met with Chancellor Jimmy Cheek and Athletic Director Joan Cronan to inform them of her condition.
Role reversal. Texas A&M coach Billy Kennedy in early stages of Parkinson's. COLLEGE STATION, Texas (AP) – Texas A&M coach Billy Kennedy said Thursday that he is in the early stages of Parkinson's disease. Kennedy took a leave of absence from the team earlier this month to undergo testing after experiencing neck and shoulder pain for several months that led to an inability to sleep regularly.
The tests revealed that Kennedy was in the early stages of Parkinson's disease, a progressive disorder of the nervous system that affects movement. "I am heeding the advice of my doctors and addressing the disease and its symptoms," Kennedy said in a statement. "We have begun a long-term treatment plan and recovery. My doctors are encouraged and are telling me I will be able to come back soon. " Associate head coach Glynn Cyprien took over when Kennedy took his leave and will continue to be in charge of the team. "We have a good prognosis," Kennedy said.
The 47-year-old Kennedy was hired from Murray State in May after Mark Turgeon left to become coach at Maryland. News About Clinical Trials — National Organization for Rare Disorders. NORD shares information about opportunities to participate in clinical trials so that patients and their physicians may decide whether specific studies are appropriate for them. We do not endorse or recommend participation in any specific clinical trials. The following is a brief sampling of current studies. For more comprehensive information about opportunities to participate in research, go to www.clinicaltrials.gov.
Alkaptonuria (AKU) The developAKUre clinical study is evaluating the safety and efficacy of a new drug, Nitisinone, for patients with AKU. Clinical trial participants may be from anywhere in Europe (excluding United Kingdom) and must be aged 25 or over with a diagnosis of AKU and documented increase in urine or plasma HGA. AKU patients from the UK and Europe are being sought for participation in the SONIA 2 trial that will assess the long-term suitability of nitisinone for use in AKU patients. Anaplastic Thyroid Cancer Chronic Thromboembolic Pulmonary Hypertension (CTEPH) LANDMARK NORD STUDY CONCLUDES FDA IS FLEXIBLE IN REVIEWING THERAPIES FOR RARE DISEASES — National Organization for Rare Disorders.
Released at Major Conference, Study Catalogues Flexibility in Orphan Drugs Approved Since 1983 Washington DC, October 11, 2011 – The National Organization for Rare Disorders (NORD) today released a landmark report documenting flexibility in the Food and Drug Administration (FDA) review of potential treatments for patients with rare diseases. Released at the U.S. Conference on Rare Diseases and Orphan Products, the report examined the basis for FDA’s approval of 135 non-cancer “orphan drugs” – those for rare diseases – since the Orphan Drug Act was enacted in 1983 to provide incentives to encourage development of treatments for rare diseases. This is the first study of its kind ever conducted and the first time that there has been a systematic examination of the basis for approval for any category of drug products extending over such a long period of time.
The study demonstrates a decades-long pattern of flexibility in FDA review of orphan drugs. Frank J. NORD President and CEO Peter L. Welcome to NORD — National Organization for Rare Disorders. Steve Jobs and alternative cancer care. Despite questions about Steve Jobs' use of alternative medicine, such treatements have a place in cancer care, writer says. Andrew Weil says he can't say if Steve Job's treatment choices shortened his lifeHe says in his studies he has found no alternative therapy for cancer that is effectiveBut, he says, alternative therapies can help strengthen body during cancer careWeil: Integrative medicine should be essential part of cancer care Editor's note: Andrew Weil is the director of the of the integrative medicine program at the University of Arizona College of Medicine, and Professor of Medicine and Public Health, author of 8 Weeks to Optimum Health, Healthy Aging, and the forthcoming Spontaneous Happiness.
He co-edited, with Donald Abrams, MD, a textbook of Integrative Oncology published by Oxford University Press. (CNN) -- Steve Jobs had a long run with a rare form of cancer (a pancreatic neuroendocrine tumor) that is sometimes curable by early surgery. Andrew Weil.